HELP! Have you experienced or do you know someone who has POTS
“Postural orthostatic tachycardia syndrome (POTS) is one of a group of disorders that have orthostatic intolerance (OI) as their primary symptom.
OI describes a condition in which an excessively reduced volume of blood returns to the heart after an individual stands up from a lying down position. The primary symptom of OI is light-headedness or fainting. In POTS, the light-headedness or fainting is also accompanied by a rapid increase in heartbeat of more than 30 beats per minute, or a heart rate that exceeds 120 beats per minute, within 10 minutes of rising. The faintness or light-headedness of POTS are relieved by lying down again. Anyone at any age can develop POTS, but the majority of individuals affected (between 75 and 80 per cent) are women between the ages of 15 to 50 years of age. Some women report an increase in episodes of POTS right before their menstrual periods. POTS often begins after a pregnancy, major surgery, trauma, or a viral illness. It may make individuals unable to exercise because the activity brings on fainting spells or dizziness.”
Research is on-going in the USA but perhaps because this is a rare condition, there seems to be less research in the UK. Are there any support groups? Are there any doctors, nurses, consultants, naturopaths, sufferers who are creating a knowledge base for the UK?
Please, if you know of anyone, or would like to tell your story, contact us and we will pass your details on to Helen.
Helen, who is living with POTS, is interested in hearing about treatments, experiences, support groups, and options and what can be done to improve outcomes for UK patients.
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